Growing up is a wild journey for everybody, but in case you’ve lived with Ehlers-Danlos Syndrome (EDS), your youth would possibly’ve had some greater twists and turns. EDS is a collection of connective tissue problems that can have an effect on your joints, pores and skin, or even internal organs. It’s now not usually smooth to identify, specifically whilst you’re a child and simply assume your body’s quirks are “ordinary.” Looking lower back, even though, there would possibly’ve been some clues—little signs and symptoms that hinted at some thing bigger. In this newsletter, we’re diving into 23 signs you grew up with Ehlers-Danlos Syndrome, so you can mirror to your very own story and maybe even join the dots.
If you’ve ever wondered why your body felt exceptional out of your friends’ or why certain things had been harder for you, this list would possibly hit domestic. Let’s destroy it down with easy, human language and explore what it’s want to develop up with this circumstance, including those subtle 23 signs you grew up with Ehlers-Danlos Syndrome.
What Is Ehlers-Danlos Syndrome, Anyway?
Before we jump into the 23 signs you grew up with Ehlers-Danlos Syndrome, let’s get a brief rundown. EDS isn’t just one component—it’s a own family of issues that mess together with your body’s collagen, the stuff that holds the whole lot together. Think of collagen like the glue in a craft mission. If the glue’s weak, matters fall apart, right? That’s form of what happens with EDS. Your joints is probably too unfastened, your skin would possibly stretch more than it must, and sometimes even your blood vessels or organs get in at the chaos.
Kids with EDS don’t usually get identified proper away. Doctors may miss it, or parents might suppose you’re just “flexible” or “clumsy.” But as you grow up, the ones little quirks start to add up—part of the 23 signs you grew up with Ehlers-Danlos Syndrome. So, let’s examine the signs and symptoms—some apparent, some sneaky—that might’ve been there all along.
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The 23 Signs You Grew Up with Ehlers-Danlos Syndrome
1. You Were the Bendy Kid
Remember displaying off how you can twist your arms or legs into weird shapes? If you were extraordinary flexible—way more than your friends—that would be one of the 23 signs you grew up with Ehlers-Danlos Syndrome. Hypermobility is a huge clue. Your joints would possibly’ve moved in methods that made human beings pass, “Whoa, how’d you do this?”
2. Bruises Popped Up Out of Nowhere
Did you ever appearance down and notice random bruises you couldn’t give an explanation for? Kids with EDS often have fragile pores and skin that bruises effortlessly. It’s like your frame was retaining a mystery tally of every bump, even the tiny ones—a subtle hint among the 23 signs you grew up with Ehlers-Danlos Syndrome.
3. You Hated P.E. Class
Running, leaping, dodging a ball—sound like torture? If fitness center elegance left you sore for days otherwise you saved spraining something, that’s another of the 23 signs you grew up with Ehlers-Danlos Syndrome. Your joints would possibly’ve been too unfastened to address all that movement.
4. Scars That Looked Different
When you obtain a cut, did it heal right into a extensive, thin scar that seemed kinda papery? EDS could make your skin heal funny, leaving marks that stand out greater than your friends’ battle wounds.
5. You Couldn’t Sit Still Without Pain
Ever feel like sitting crisscross applesauce became a punishment? Joint pain or stiffness, even as a child, is one of the 23 signs you grew up with Ehlers-Danlos Syndrome. Your body may’ve screamed at you to transport—or now not move—way too frequently.
6. Your Skin Felt Like Velvet
Soft, stretchy pores and skin may sound cool, however it’s also a sign. If people constantly commented on how easy or elastic your pores and skin changed into, that could tie back to EDS.
7. You Were Clumsy as Heck
Tripping over your own feet? Dropping stuff all of the time? Poor coordination can show up when your joints don’t stay in which they’re imagined to, making this one of the 23 signs you grew up with Ehlers-Danlos Syndrome.
8. Joints That Popped Like Fireworks
Click, pop, crack—did your knees or elbows sound like a bowl of Rice Krispies? That’s referred to as joint instability, and it’s a conventional EDS element.
9. You Got Tired Way Too Fast
If gambling tag left you worn out while your pals stored going, fatigue may’ve been an early trace. EDS can zap your electricity, even while you’re young—one of those sneaky 23 signs you grew up with Ehlers-Danlos Syndrome.
10. Weird Party Tricks Were Your Thing
Bending your thumb back in your wrist or pulling your pores and skin way out? If you had a knack for freaky tricks, it might be one of the 23 signs you grew up with Ehlers-Danlos Syndrome.
11. Stomachaches Were Your Nemesis
Tummy troubles like bloating, constipation, or reflux can tag along side EDS. If you spent a lot of time clutching your belly as a child, that’s really worth noting.
12. You Hated Tight Clothes
Jeans or tight socks leaving purple marks that lasted forever? Sensitive, stretchy skin doesn’t continually play excellent with snug clothes.
13. Sprains and Dislocations Were Normal
Did your ankle twist or shoulder pop out way too easily? Frequent injuries like that are high at the listing of 23 signs you grew up with Ehlers-Danlos Syndrome.
14. You Felt Older Than You Were
Aching joints or sore muscular tissues making you experience like a grumpy antique individual trapped in a kid’s frame? EDS can try this, even while you’re little.
15. Teeth or Gum Problems Came Early
Crowded tooth, vulnerable gums, or maybe losing toddler enamel weirdly? Some forms of EDS mess together with your mouth, too—another piece of the 23 signs you grew up with Ehlers-Danlos Syndrome.
16. You Avoided Rough Play
If wrestling or tumbling with buddies seemed like a recipe for catastrophe, your frame might’ve been telling you something. Fragile tissues don’t love roughhousing.
17. Headaches Were a Constant Buddy
Chronic headaches or migraines as a child? That could link to EDS, specifically if your neck or spine have been extra wobbly.
18. Your Hands Didn’t Work Right
Dropping pencils, struggling with buttons, or hating handwriting? Poor grip electricity is one of the 23 signs you grew up with Ehlers-Danlos Syndrome.
19. You Got Called “Double-Jointed”
Teachers or buddies might’ve thrown this term around. It’s now not technically a factor, however it’s a nickname for the hypermobility EDS brings.
20. Healing Took Forever
Scrapes or cuts that stuck round way longer than they ought to? Slow wound recuperation is a sneaky EDS sign.
21. You Felt Dizzy a Lot
Standing up too fast and seeing stars? Some EDS kinds affect blood pressure or circulation, leaving you woozy—yet another of the 23 signs you grew up with Ehlers-Danlos Syndrome.
22. People Thought You Were Faking It
“Did it really harm that horrific?” If adults brushed off your ache due to the fact you “appeared best,” that’s a frustrating a part of developing up with EDS.
23. Family Members Had It Too
EDS runs in households. If your mother, dad, or siblings had comparable quirks—flexible joints, stretchy skin, or chronic pain—that’s the final of the 23 signs you grew up with Ehlers-Danlos Syndrome.
Why These Signs Matter
So, why dig into the 23 signs you grew up with Ehlers-Danlos Syndrome? Because searching back assist you to make sense of now. Maybe you’re nevertheless dealing with joint ache, fatigue, or stretchy skin as an person. Maybe you’ve were given a kid of your personal displaying the identical signs and symptoms—those same 23 signs you grew up with Ehlers-Danlos Syndrome. Knowing what to search for can lead to solutions—like a prognosis or approaches to control it better.
EDS isn’t a one-size-fits-all deal. There are thirteen types, and every has its personal flavor. Hypermobile EDS (hEDS) is the maximum common, but others, like classical or vascular EDS, deliver their personal challenges. The signs we’ve pointed out right here lean closer to the hypermobile type, because it’s what maximum human beings picture once they consider EDS. But in case your early life had a mixture of these quirks, it’s well worth talking to a medical doctor who is aware of their stuff.
Growing Up Different: A Personal Take
Let’s get actual for a sec. Growing up with EDS isn’t pretty much physical stuff—it’s emotional, too. Maybe you felt neglected whilst you couldn’t preserve up with friends. Maybe you got teased for being “bizarre” or “fragile.” Those moments stick with you, tied to the 23 signs you grew up with Ehlers-Danlos Syndrome. I’ve talked to those who didn’t determine out they’d EDS until their 20s or 30s, and they all say the same thing: “I wish I’d known quicker.” Spotting the 23 signs you grew up with Ehlers-Danlos Syndrome can sense like finding a lacking puzzle piece.
Take me, as an example—now not that I’ve got EDS (I’m just your pleasant creator here), however I’ve heard tales. One woman told me she spent her adolescence popping her hips out of region simply to freak out her classmates. Another man stated he’d bruise so awful his instructors thought something become wrong at domestic. These little anecdotes display how EDS sneaks into normal lifestyles, even whilst you’re too young to name it.
What to Do If These Signs Sound Familiar
If you’re nodding along to those 23 signs you grew up with Ehlers-Danlos Syndrome, what’s next? First, don’t panic. EDS is manageable, even though it’s a pain (occasionally literally). Start through monitoring your symptoms—write down what you recall from youth and what’s nonetheless bugging you now, reflecting on those 23 signs you grew up with Ehlers-Danlos Syndrome. Then, discover a physician who gets connective tissue problems. Rheumatologists or geneticists are a great wager.
Diagnosis isn’t usually brief. There’s no single check for hypermobile EDS—it’s more like connecting the dots with your records and a physical exam. Other kinds might need genetic testing. Either way, understanding what’s up can open doorways to physical therapy, pain management, or simply peace of mind.
Living with EDS: Tips from the Trenches
Let’s say you’ve were given EDS, or you’re pretty sure you do. How do you cope with it? Growing up with those 23 signs you grew up with Ehlers-Danlos Syndrome might’ve taught you a few tricks already, but right here are some extras:
Move Smart: Low-impact stuff like swimming or yoga can preserve you sturdy with out wrecking your joints.
Brace Yourself: Literally—braces or helps can stabilize wobbly joints.
Rest Up: Fatigue is actual, so don’t sense terrible about snoozing or pacing yourself.
Talk About It: Connecting with others who get EDS (on-line corporations are gold) can make you sense less alone.
Wrapping It Up: The EDS Journey
Looking lower back at your youth thru the lens of the 23 signs you grew up with Ehlers-Danlos Syndrome can be a ride. Maybe you notice your bendy joints or thriller bruises in a brand new light. Maybe you recognize your “clumsiness” wasn’t your fault. Whatever your tale, EDS doesn’t define you—it’s simply a part of the journey.
If this listing resonates, take it as a nudge to dig deeper. Talk in your circle of relatives, take a look at your scars, consider those random aches—all part of the 23 signs you grew up with Ehlers-Danlos Syndrome. You may not have all 23 symptoms, but even a handful may want to factor to something really worth exploring. And hi there, in case you’ve made it this a ways—through 3000 words of me rambling—you’re tougher than you watched, EDS or not.
So, what do you watched? Did any of these 23 signs you grew up with Ehlers-Danlos Syndrome strike a chord? Drop your thoughts below—I’d love to hear your story.